Resources for Families

The UKD Foundation has compiled the following links and resources that may be useful to families affected by Uromodulin Kidney Disease. The UKD Foundation does not endorse any of these programs or services.

Financial Support

  • The American Kidney Fund fights kidney disease through direct financial support to patients in need, health education and prevention efforts. It is the leading organization in the US for charitable assistance to dialysis patients.

Kidney Diseases

  • The National Kidney Foundation is dedicated to the awareness, prevention and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.

Rare Diseases

  • The National Organization for Rare Disorders (NORD) is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
  • Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.

UKD Doctors